20090629

'Special children who make my day '

Imagem: Abu Dhabi Media Company PJSC
Legenda: Nipa Bhuptani, right, the head of the Autism Department of Future Centre For Special Needs.
Philip Cheung / The National
...
"Wednesdays, Nipa Bhuptani concedes, can be a bit boring.

This is the day the children from the autism department she heads at Abu Dhabi’s Future Centre for Special Needs are taken out to a mall. So Mrs Bhuptani is left with the paperwork in her tiny office beside the classrooms.

“When I am an hour into work, I start to think, ‘This is too quiet’,” she says. “It is the most dull day because they’re all gone.”

It is 18 years since Mrs Bhuptani, 43, moved to the UAE capital from her native India. For more than 10 years she worked in mainstream kindergartens but finally decided that she needed “something more”.

“I’ve found that in what I’m doing,” she says now. “I don’t know why I’m here, but I know that I love doing this job. My job is a challenge every day, and I need that.”

Most days, the challenge involves managing and motivating the eight staff who look after the 12 children, aged five to 14, in the autism department.

It is not easy work. Children with autism tend to have difficulty communicating and poor social skills, and some can be aggressive. This makes it difficult for the teachers, teaching assistants, speech and language specialists and occupational therapists whom Mrs Bhuptani supervises.

The key, she says, is to set small goals each day and celebrate when they are achieved.

“We make a big deal of any success that we see,” she says. “Motivating staff is a very important part because this job can take a lot out of you.”

On a typical day, Mrs Bhuptani arrives shortly before 8am, when the children come in. She sits with her staff and discusses each child and the progress he or she making. After lessons start, she spends much of her time in the classroom with the children and coaching the teachers.

If a teacher is not doing things right, she says, “I have to do it for her so she can do it. It’s completely hands-on, and it makes me stay in the classroom a lot.”

Mrs Bhuptani is a board-certified associate behaviour analyst, a title she gained after several years of studying and 1,000 hours of experience. She employs the techniques of applied behaviour analysis, taking ideas derived from experiments and using them to improve individual behaviour.

For the past year at the centre she has been employing the Competent Learner Model, a scientific regime that uses applied behaviour analysis to teach individuals with special needs. Mrs Bhuptani trained in the technique in California.

This programme, she says, has had “a lot of success” in improving behaviour and is being expanded at the centre.

At the start of the year there were many children with aggressive or self-harming behaviour, she says. One child would hit a person on average every 30 minutes, even cracking someone’s rib once.

“At the end of the year we brought it down to very, very low intensity,” she says, explaining that children would be taught to say “I must keep my hands to myself”, and ask for things appropriately.

“These are the rewards.”

After the children leave, at 1.15pm, Mrs Bhuptani stays behind for a couple of hours, doing more paperwork. She often receives visitors in the hope that raising the centre’s profile will encourage financial support. The centre relies on charitable contributions as well as fees and, because there is insufficient provision throughout the country, there is a waiting list for places. The need for more centres like hers, she says, is “vast”.

“I can be with the CEO of a company one minute, and the next minute be in the toilet with a child who’s having a tantrum,” she says, laughing. “I have to jump from one thing to the next quite quickly.”

Counselling parents “to let them not give up on their child” is another duty. Autism can be hard for them to come to terms with, Mrs Bhuptani says, because a child may look normal and be capable of impressive feats, such as completing a complex puzzle, yet be unable, say, to ask for a biscuit.

“It’s not like other special needs, where all their skills are below a certain level. It may be patchy,” she says. “Some will repeat the whole Shrek dialogue with the exact intonation, but if you ask a question such as: “What did you do yesterday?’ he won’t be able to answer,” she says, referring to the computer-animated comedy film. “That’s something parents find very difficult to cope with.”

Mrs Bhuptani, originally from Ahmedabad in the state of Gujarat, is married to a banker, Ajay, and has a 16-year-old son, Arjun, who does not have special needs.

While she says being away from family in India is one of the few downsides of life in the UAE – she visits her mother in Ahmedabad only twice a year – she has strong family connections in the Emirates. Five years ago, her younger brother Nilesh Gandhi, married with two sons, moved to Dubai, and she often visits him at the weekend.

“We also have a lot of family spending time with us here,” Mrs Bhuptani says. “My husband’s dad lives a couple of months with us each year. The house is always full of people.”

Mr and Mrs Bhuptani have remained in the UAE because of the quality of life and education, and the benefits this has brought their son. Other than the separation from her family in India, she says, “being here fulfils everything”.

Mrs Bhuptani believes that living in the UAE has given her son, born in Abu Dhabi, a unique outlook: “My son was fortunate to be born here and to go to school here because from the first year he met so many different nationalities and cultures.

“I would ask him where his friends were from and he would say: ‘From Abu Dhabi. Everybody is from Abu Dhabi.’ He believes it doesn’t matter where you’re from. That’s the biggest thing we’ve been able to give our son from being here. He sees the world very differently from us.” (Abu Dhabi Media Company PJSC | dbardsley@thenational.ae)

... some want to speak but can't, some want to hear but cannot and there are some who want to ...

"My inspiration come from these children. I see them every day, some want to speak but can't, some want to hear but cannot and there are some who want to walk but cannot. [...]" (Fiji Times Online)

Teaching Children with Disabilities in Inclusive Settings

Imagem: Capa | Teaching Children with Disabilities in Inclusive Settings
Embracing Diversity: Toolkit for Creating Inclusive, Learning-Friendly Environments Specialized Booklet, 3
Bangkok: UNESCO Bangkok, 2009, 109 p.
ISBN 978-92-9223-243-6 (Print version)
ISBN 978-92-9223-244-3 (Electronic version)

Download PDF 2.3MB
Content
* Defining “Disabilities”
* Barriers to Learning, Development and Participation and How to Overcome Them
* Accessible School Environments – Universal Design Principles
* Hearing Impairment
* Visual Impairment
* Physical Impairment - Motor and Mobility Impairments
* Developmental / Intellectual Impairment
* Specific Learning Difficulties
* Other Impairments and Disabilities
* Social, Emotional and Behavioural Difficulties
* Deafblindness
* Multiple Impairments
* Where to Learn More – Internet Resources
* Contacts for Publications
* Glossary

Related Link:

'Just published: regional reports on adult learning and education'

Imagem: © UNESCO/K. Anis
"Four regional reports on adult learning and literacy have been published focusing on the Arab States, Asia and the Pacific, Latin America and the Caribbean and sub-Saharan Africa between 1997 to 2007. These regional reports will inform discussions at the Sixth International Conference on Adult Education (CONFINTEA VI) to take place end of 2009 in Brazil.

Compiled by UNESCO Member States, the four reports include national information on the situation of adult learning and education since the fifth International Conference on Adult Education (CONFINTEA V) in 1997.

The Sixth International Conference on Adult Education (CONFINTEA VI) was to be held 19-22 May 2009 but was postponed by the Brazilian government due to health security concerns about Influenza A (H1N1). The new dates for the conference will be confirmed shortly." (UNESCO | 24-06-2009)

Related links

United Nations Human Rights Council recognises maternal mortality as human rights concern

pmnch

Governments commit to promoting women and girls health and rights
Author(s)/Editor(s): Human Rights Council
Publication date: 17 June 2009
Language: English

17 JUNE 2009 | Geneva - The Human Rights Council, at its eleventh regular session, has adopted a landmark resolution on ‘Preventable maternal mortality and morbidity and human rights’ in which governments express grave concern for the unacceptably high rates of maternal mortality and morbidity, acknowledge that this is a human rights issue and commit to enhance their efforts at the national and international level to protect the lives of women and girls worldwide. Over 70 UN member states co-sponsored this resolution, led by Colombia and New Zealand.

20090615

A palavra a Paul Stewart via Friends of Balibo: um relato impressionante!

Guitars to Timor-Leste, Five to Balibo

From Paul Stewart
"WHEN my band mate Gil Santos lost his father in the 1975 Indonesian invasion all he was left with was his Dad's ``soccer ball and guitar.''
It was fitting really because music is such a vital part of life too many Timorese as we found out on a recent return visit to East Timor where Gil and I distributed 30 donated guitars to groups of blind, disabled and struggling musicians.
Giving a kid a guitar in Timor is like giving them a car, such is the joy and wide eyed rapture at such a gift.
Amongst the 30 guitars, we thought it only fitting to take five guitars up to the Balibo House to donate one for each of the journalists lost there in 1975.
It was a great trip and house manager Rogerio gladly accepted the instruments.
Once again, though any visit to East Timor only opens you up to other worthy fund raising tasks,
For example in Dili we met the Alma Nuns who look after the disabled kids of Timor Leste.
Unfortunately for the Sisters their work load is an equation that just does not add up.
Afterall, there are hundreds of disabled children, four nuns and they own only one tiny motor scooter.
The spirit may be willing but it just does not add up for the ALMA nuns.
The four nuns of this religious order, inspired by the work of Mother Teresa, fight a constant battle against the numbers in their inspirational work looking after the disabled children of the former Portuguese colony who are described in social terms as ``the lowest of the low.’’
Raising a disabled child is hard enough to contemplate in well to do Australia but in one of the world’s newest and poorest nations it is just a nightmare.
The nuns of the ALMA order are attempting to help the parents of disabled children with their help but because of their limited means of transport they just cannot get around to visiting enough kids.
ALMA is an acronym for " Asossiasi Lembaga Misionaris Awam", which means Association of Lay Missionaries for the poor and the disabled).
The Nuns who consecrate themselves completely to Christ and the Kingdom of God, serve only the most disadvantaged children (the poor, the abandoned, the disabled) and live amongst them in togetherness in the community.
The sisters task is to help and to empower the abandoned, poor and disabled helping along the way to change the mentality of the community towards them.
They are under the jurisdiction of Bishop Dili and their mission has been operation in for three years.
At the homes they do visit the Sisters perform physiotherapy on the disabled children and then instruct the parents of the disabled child to do the same.
Their work is showing great results.
On a recent visit around the back blocks of Dili with the Sisters I met a young chap called `Lorenzo’’ who could now sit in a chair and perform tasks his crippled body just would not let him perform until he started therapy with the nuns.
Unfortunately, the Sisters say they cannot keep up with the huge demand for their services.
East Timorese Alma Nun Sister Justine said the order had only the use of one tiny motor scooter.
``If we had a four wheel car with a tray we could do a lot, lot more work,’’ she sighed.
``We could even get out into the countryside to visit the really disadvantaged disabled children.
``It would be a miracle if Australian Christians could help us get a vehicle. Not brand new just one to help us with our work.’’
A leading East Timorese Government official Joaquim Santos has said he would purchase a good vehicle for the nuns from a credible Dili second hand car dealer.
``We would just need about $10,000 in funds,’’ he said.
``While the world is going through tough economic times and money is tight for everyone these kids need a lot more help than most.’’
The Jesuit’s have come to the party agreeing to get funds to the nuns via their Dili office.
Those wishing to making a donation should send funds to ``ALMA Nuns East Timor’’ c/o The Jesuit Mission, P.O. Box 193 (31 West Street)
North Sydney NSW 2059 AUSTRALIA" ( )

20090614

INFO: Inclusive Education

Imagem: capa do CD ‘I AM WOMAN’ - Support Mothers in Timor-Leste

"Inclusive education is based on the right of all learners to a quality education that meets basic learning needs and enriches lives. Focusing particularly on vulnerable and marginalized groups, it seeks to develop the full potential of every individual.

The ultimate goal of inclusive quality education is to end all forms of discrimination and foster social cohesion.

20090611

World Day Against Child Labour


"Planetary World Service (www.planetaryworldservice.org) is creating a weekly service assignment movie clip, with the hope to inspire the global community to use the power of their consciousness to help co-create positive change in this world. This week's assignment (June 11-17,2009: World Day Against Child Labour) " (IAMUniversity)

20090608

Tão perto de Timor!!! Um excelente exemplo :-)


Copyright © 2007 - 2009 Rudely Interrupted
"Rudely Interrupted are one of Australias truly unique indie rock acts. 5 out of the 6 members share a range of both physical and intellectual disabilities (Blindness, Deafness, Aspergers, Autism and Down Syndrome) but most importantly, a common interest in self expression through music. Their achievements, both personal and professional to date are extraordinary. [...]" (About Rudely Interrupted)

Site oficial da banda: http://www.rudelyinterrupted.com/index.php


East Timor Scribd Group

UNESCO: HIV/AIDS Latest News

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